EB Research Partnership and EB Research Foundation Join Forces to Advance Breakthroughs in Epidermolysis Bullosa Research
28th August 2018
EB Research Foundation announces a global partnership with @EB Research Partnership USA to accelerate our shared mission of advancing life-saving treatments for Epidermolysis Bullosa.
Emerson Harvey joins the EB Research Foundation as Junior Ambassador
9th April 2018
The EB Research Foundation is delighted to announce Go Karting star-on-the-rise , Emerson Harvey as a Junior Ambassador.
Emerson’s has a personal connection with EB and plans to help create more awareness of this heartbreaking condition.
2016-17 Annual Report
29 January 2018
We are pleased to announce that our first Annual Report has been published and provides a snap-shot of our achievements and audited financial statements over our initial months of operation, until June 30, 2017.
Million Dollar Club Launch
06 January 2017
The EB Research Foundation is proud to announce the launch of our Million Dollar Club. The Million Dollar Club is made up of a network of caring individuals that contribute an ongoing annual investment of more than $10k to the EB Research Foundation. The Club has the capacity of holding more than 100 members, thus generating more than $1M per annum.
100% of funds invested into the Million Dollar Club are dedicated to research into a cure for the worst disease you have never heard of. And all contributions are fully tax deductable.
For more information please get in touch.
Jonathan Brown joins EB Research Foundation
18 August 2017
The EB Research Foundation is delighted to announce AFL Great, Jonathan Brown as an Ambassador.
Brown’s personal connection with the disease has led to his commitment to raise the profile of this amazing cause. Jonathan and wife Kylie’s daughter Olivia has a friend Otto who has EB…
Inaugural #CureEB Ladies Lunch
4 August 2017
Join us for the launch of the first annual women’s
#CureEB Ladies Lunch.
Friday 27th October 2017 12pm – 4pm
Peninsula C, at Melbourne’s spectacular Docklands.
Shed 14/161 Harbour Esplanade, Docklands VIC 3008
Tickets are $165pp available in tables of 8 @ $1320 per table
Tough Tilly Day confirmed for January 6, 2018
10 July 2017
Join us for an evening of fun and music at Tough Tilly Day 2018. January 6th 2018 at the Wharf, Port of Echuca.6:30pm – 11:30pmTickets: Adults $60 Children: $20
Drinks at Bar prices, Kids Soft Drinks $2. Entertainment by the Voices of TaxiRides Jason Singh, Boom Crash Opera’s Dale Ryder, Reece Mastin, Katie Underwood, Taylor Sheridan & DJ Alley Cat
Cotton Ball Car Raffle, thanks to Ferntree Gully Kia
22 May 2017
Last week we had great honor in presenting the lucky winner of The Cotton Ball Car Raffle, Scott Shelton with his All New Kia Rio, thanks to Cameron Doidge and his wonderful team at CD Motor Group.Ryk from Ferntree Gully Kia presented the keys to Scott who still couldn’t believe it!!
Well done Scott, thanks for attending The Melbourne Cotton Ball 2017. Drive safe!!
Thank you Brighter Days
05 May 2017
A huge thankyou to the Brighter Days Foundation for their pledge to donate $60,000 to EB Research. Your support is greatly appreciated. The Brighter Days Festival is an amazing event held in Bright, Victoria each March. It is a fantastic family weekend of bikes, cars and music. For more info: www.brighterdays.org.au
The Cotton Ball - Public launch of Australia’s new EB Research Foundation.
Sat 29 April 2017
Tonight, at the Cotton Ball, we embark on an exciting journey – with the public launch of Australia’s new EB Research Foundation.
Our sole purpose is to bring about a cure for this devastating disease as soon as possible. It’s only then that the pain and suffering will truly end. We know it’s a bold ambition and likely to be a long, expensive and challenging endeavor. But we are confident we have the right model and team in place to make it happen. And tonight we have raised more than $400K to get us one step closer to a cure.
If you’ve landed here, you know where to come to find the latest news on the EB Research Foundation and upcoming fundraising events. I sincerely hope you keep coming back to watch our progress. On behalf of the board, I’d like to invite you to help us in our quest. We look forward to bringing you along for the ride.
Director EB Research Foundation
Co-Chairman The Cotton Ball.
Thank you BSO
Sat 29 April 2017
Thank you to Jason and Janelle at BSO for giving up their Saturday afternoon to put the finishing touches on the EBRF site before its launch. You’ve done a great job.