The pain ends with a cure
Epidermolysis Bullosa is a debilitating skin disorder and life sentence for children and families who live with the pain day in day out. And because most people have never heard of EB, a lack of research holds back an end to this devastating condition. We believe a cure is within reach. But vital research is needed to unlock the genetic code behind this cruel disease.
Our mission is to raise funds to resource and enable, the best scientific minds in the world of genetic research to focus on that cure.
We bring global experience and a new model to enable us to identify and commercialise pharmaceutical and other medical opportunities – earning additional funds to direct back into research. We call it enterprise philanthropy. It’s a new way of thinking, designed to end the pain faster.
Our founding members have all been touched by EB in different ways and bring a diverse range of skills, experience and expertise to the organisation. Together we share a passion to achieve a singular common goal – to find the cure for EB.